Ankylosing spondylitis

Hello everyone.

I'm young and I may have this disease (Ankylosing spondylitis). I've seen a lot of doctor and just one of them tell me I may have this disease. I don't have the gene HLA-b27 but it's seems like some people can have the disease without the gene.

My doctor put me on anti-Tnf alpha and it helps me when I have pain. At first I used to take it every week but after talking with the doctor, now I only take it when I'm on hard pain.

Anyway, I try to figured out something by myself because my doctor isn't very "interest" with my disease.

Do any of you know if it's possible to have almost 0 as CRP (on blood analysis) and have Ankylosing spondylitis ? Another question, I have also hypertension but without cause and I have muscle "spasm" what I mean is that my muscle on the butt and shoulder are very hard like if I was working out but this come on go. (don't know if its spasm, english is not my language as u may have seen already) if anyone know a disease that can include all my problems feel free to tell me.

I know it's something very particular but I try to post here because maybe someone can help me.

Thank you for your help and your time.

A.