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Getbig Main Boards => Gossip & Opinions => Topic started by: dustin on July 29, 2013, 12:04:47 AM

Title: Kidney cancer (serious post)
Post by: dustin on July 29, 2013, 12:04:47 AM
Anyone familiar with papillary renal cell carcinoma?

Stepfather has it bad. Spread to his bladder and lungs. Superior casa vena tumor is wrapping around. Burst a cyst picking something up at home which indicated to me that things are evaluating quicker than I can comprehend them. Right kidney removed last May. Final patho report notes new tumors at surgical site and fast progression.

I told myself to stay strong especially for my mom, but it cut me down like a bitch when he told me his biggest disappointment was not being able to watch his grand babies grow up and my bro and I explaining to the kids why grandpa is dying.

I know, Dear Diary right. Just sucks knowing it's not like other cancers where he'll get chemotherapy, lose his hair, take some heartwarming pictures all fucked up and bounce back with a success story. He's just going to die and we get to watch helplessly. Not even 50 years old.

He'll be taking sunitinib and I'm looking for clinical trials for him to participate in. He was going to do one already but we redid his pathophysiology report and they basically said he's getting fucked way faster than they'd hope so we changed the course of action. My family comes to me to be there rock but I feel like helpless and overwhelmed. I wouldn't wish this on my worst enemy.
Title: Re: Kidney cancer (serious post)
Post by: calfzilla on July 29, 2013, 12:48:48 AM
Family friend has/had it, not sure since I'm not extremely close to them. I think one kidney has been removed...I don't really know much else. Sorry to hear about your stepdad, sucks just stay strong iron brother. Sounds like you really give a shit and are doing all you can.
Title: Re: Kidney cancer (serious post)
Post by: bebop396 on July 29, 2013, 01:09:45 AM
Watching and taking care of someone dieing from cancer just fucking sucks, been there...Best wishes to you and your stepdad and mom...
Title: Re: Kidney cancer (serious post)
Post by: Mawse on July 29, 2013, 01:10:28 AM
Aunt died of it, really fast too. They did an op to remove it but it was too late, its a bitch of a disease. The cperimental chemo just ruined her last month IMO. Hope your stepdad has a better prognosis
Title: Re: Kidney cancer (serious post)
Post by: ether on July 29, 2013, 03:45:59 AM
sunitinib works very well for RCC, but usually clear cell.
Title: Re: Kidney cancer (serious post)
Post by: _bruce_ on July 29, 2013, 05:27:17 AM
Last years my father died from cancer.
Stay strong.
Title: Re: Kidney cancer (serious post)
Post by: King Shizzo on July 29, 2013, 05:28:11 AM
Stay strong and hope for the best.
Title: Re: Kidney cancer (serious post)
Post by: galain on July 29, 2013, 05:51:48 AM
Sad news mate - sorry to hear.

My dad died from cancer (not kidney) and I know this sounds shitty, but at some point it helps to focus on helping the person to die well, rather than fuck them around with all sorts of gruesome drugs in order to milk another 2 months of discomfort. I don't mean this in a negative way - just telling you it helped me a lot when I was able to switch my thinking like this.

And with cancer, you do get a chance to say goodbye. I had a friend who lost both parents within 3 days of one another to heart attacks. I don't think she ever fully recovered from the shock of that.
Title: Re: Kidney cancer (serious post)
Post by: Archer77 on July 29, 2013, 06:21:43 AM
Sad news mate - sorry to hear.

My dad died from cancer (not kidney) and I know this sounds shitty, but at some point it helps to focus on helping the person to die well, rather than fuck them around with all sorts of gruesome drugs in order to milk another 2 months of discomfort. I don't mean this in a negative way - just telling you it helped me a lot when I was able to switch my thinking like this.

And with cancer, you do get a chance to say goodbye. I had a friend who lost both parents within 3 days of one another to heart attacks. I don't think she ever fully recovered from the shock of that.

Great post!  Everything I wanted to say. My heart goes out to Dustin and his family and anyone who is or has gone through a battle with cancer, either themselves or a family member.
Title: Re: Kidney cancer (serious post)
Post by: Marty Champions on July 29, 2013, 06:28:25 AM
heme-iron

simple fix

avoid heme-iron (found in meats)

look up on google "heme-iron cancer"
Title: Re: Kidney cancer (serious post)
Post by: Mr Anabolic on July 29, 2013, 06:30:29 AM
My father also died from this.  He was an alcoholic for many years.  He started drinking when he was 16 and stopped in his early 50's.  In 2011 he was diagnosed with stage 4 cancer... by then, the cancer had spread everywhere.  He died of kidney and liver failure in late 2011, he was 71.

Lesson learned:  Don't drink alcohol.  Don't fall victim to the social pressures and the strategic marketing.  It's toxic... even in small amounts.  
Title: Re: Kidney cancer (serious post)
Post by: Marty Champions on July 29, 2013, 06:32:38 AM
doctors wont ever tell you about heme-iron or they will face scrutiny from there superiors and go under audits and lose there jobs. thats how the medical community works

im giving you the solution but its hard to get people to not eat meat
Title: Re: Kidney cancer (serious post)
Post by: Primary Captain on July 29, 2013, 06:37:03 AM
heme-iron

simple fix

avoid heme-iron (found in meats)

look up on google "heme-iron cancer"
Dude: The poor man being referred to has cancer. Please afford him the same respect and seriousness you would require for a loved one. Just don't  post here.
Title: Re: Kidney cancer (serious post)
Post by: Marty Champions on July 29, 2013, 06:39:13 AM
notice all the shitty replies in this thread except mine (offering a solution) instead of emotionally based condolences wich is cliche when someone is faceing a life ending situation

now think about that for a second

do you really want to hear the same ol (hang in there buddy") or are you actually going to take a natural approach instead of the medically advised chemo wich has a higher fail rate than success?

Title: Re: Kidney cancer (serious post)
Post by: Marty Champions on July 29, 2013, 06:41:34 AM
Dude: The poor man being referred to has cancer. Please afford him the same respect and seriousness you would require for a loved one. Just don't  post here.

shut the fuck up read my post

respecting someone that is dieing will NOT save there life or give them any tools to over come it

like when my back was hurting bad my dad said 'stop being a pussy and do somethin about it'

if you havent manipulated your diet then you really havent done anything to fight the problem

you are made up of your food
Title: Re: Kidney cancer (serious post)
Post by: blazer000 on July 29, 2013, 06:42:08 AM
buddy,

its appointed to every man once to live and twice to die. we must die that spiritual death to ourselves every day. Live right in front of him and in front of others. its not going to be easy. nothing i can say or do or anyone on here for that matter will help.
Title: Re: Kidney cancer (serious post)
Post by: Mr Anabolic on July 29, 2013, 06:43:47 AM
notice all the shitty replies in this thread except mine (offering a solution) instead of emotionally based condolences wich is cliche when someone is faceing a life ending situation

now think about that for a second

do you really want to hear the same ol (hang in there buddy") or are you actually going to take a natural approach instead of the medically advised chemo wich has a higher fail rate than success?


I agree with that.  What did my father in was the chemo and radiation treatments... it killed his immune system.  They literally "treat" cancer patients to death... especially if you are past 65 and not working anymore (ie. not paying taxes).
Title: Re: Kidney cancer (serious post)
Post by: Marty Champions on July 29, 2013, 06:44:17 AM
alot ALOT of people are ready to die and be on there way out, they are angry at life, you will never convice these people to stop eating meat NEVER

a loving caring person can EASILY change there eating habits

you can ask a meat eater , why do you eat meat? ("it tastes good, gives me energy")

then you ask but you have cancer will you stop eating meat ('no i just cant'-is there reply
Title: Re: Kidney cancer (serious post)
Post by: Marty Champions on July 29, 2013, 06:46:51 AM
I agree with that.  What did my father in was the chemo and radiation treatments... it killed his immune system.  They literally "treat" cancer patients to death... especially if you are past 65 and not working anymore (ie. paying taxes).

a doctor will never advise alterior methods like avoiding heme-iron they will face audits by there superiors and the doctors life will be fucked career fucked. HOW MANY TIMES DO I FUCKING HAVE TO SAY THIS

many young doctors go into the feild with good intentions but quickly realize they must follow protocol

people just have no clue about doctors. its a shame people dont investigate for themselves
Title: Re: Kidney cancer (serious post)
Post by: Marty Champions on July 29, 2013, 06:54:56 AM
i know for fact dustins family is typical american family who loves meat unfortunatley typical families fall under typical cancer rate statistics

I don't mind junk food from time to time, but I prefer stuff that's closer to real food than what's in fast food.

But, I won't be a pretentious little bitch. Anyone who says a nice fat Big Mac is gross is a hypocritical liar. They're fucking delicious. I love double Big Macs with extra large fries.

you can get past the taste part when health improves and realize no animal is having to die for your dinner tonite.

cooking is an art eventually you will make more delicious meals than a burger can provide, its not easy to do that but it is easy to get off meat if you care about your life and not how something tastes so much
Title: Re: Kidney cancer (serious post)
Post by: King Shizzo on July 29, 2013, 07:04:58 AM
Sorry Dustin, Groink doesnt care if people live or die on here.
Title: Re: Kidney cancer (serious post)
Post by: Primary Captain on July 29, 2013, 07:12:47 AM
shut the fuck up read my post

respecting someone that is dieing will NOT save there life or give them any tools to over come it

like when my back was hurting bad my dad said 'stop being a pussy and do somethin about it'

if you havent manipulated your diet then you really havent done anything to fight the problem

you are made up of your food
Some day when you see a love one pass away from cancer you just might grow up.
Title: Re: Kidney cancer (serious post)
Post by: Archer77 on July 29, 2013, 07:41:27 AM
Dude: The poor man being referred to has cancer. Please afford him the same respect and seriousness you would require for a loved one. Just don't  post here.

Some day when you see a love one pass away from cancer you just might grow up.

Thank you, Cap!
Title: Re: Kidney cancer (serious post)
Post by: dustin on July 29, 2013, 08:31:38 AM
Thanks, guys. And don't worry, I knew Falcon would recommend avoiding heme iron. It's to be expected.

They removed his right kidney so finding low protein, healthy organic meals has been a bit of a bitch. He grew up on the Island in a small town doing nothing but drinking and shooting guns but he's done really well cleaning up his diet. He didn't eat particularly shitty before, but now that there's zero room to fuck around he's really pulled in the reigns. Mom's always cooked well and went vegetarian a few years ago so she's been all right with the meal prep. I've been going to the farmer's markets too and connecting with local growers because we have awesome product and livestock that I should really take advantage of. It's expensive but every bit helps. I've also spent the summer building a small garden too so it's nice eating things grown by my own hand and sharing it with family.

It's tough to know how much time he has left. It's really difficult seeing the oncologist and nephrologist so infrequently and trying to piece things together. Just visiting the parents lots to help with chores and keep everyone in good spirits. I never knew how much of a weird dynamic it would be to try taking in all of this but not patronizing him and changing the way we act. I was honestly preparing for a different outcome. I thought he'd be treated with chemo, we'd tough out a shitty period and then he'd bounce back. Change of plans I guess... trying to not be too much of a bitch because I know it happens to millions, but it's a different change of plans for sure. We're expecting November 17th and my bro just had another baby girl so it's really put a lot of weight on his shoulders.

Hopefully we find some sort of complimentary therapy or a good clinical trial where he'll get a higher level of care. Sure helps to know people in the health care industry though. Getting awesome care from the local hospital and the BC Cancer Center. All we can do is handle things as gracefully as possible and make the best of our time. 8)
Title: Re: Kidney cancer (serious post)
Post by: CT_Muscle on July 29, 2013, 09:29:21 AM
Look into an Organic vegan diet
Title: Re: Kidney cancer (serious post)
Post by: dustin on July 29, 2013, 09:43:00 AM
Look into an Organic vegan diet

That's pretty much the only direction we're able to take things. I'm just really thankful that I'm shaking hands with local farmers and getting to know everyone out there. I live on Vancouver Island so there's no reason to not be eating fresh, organic veggies at the very least. Meat is very sparse. Oncologist said he can afford some but outside of fresh salmon and organic chicken that's about all. It's just there to keep him sane. Dude can't drink beer anymore so taking away meat must be horrible. He's been great and hasn't complained at all, but I know it's gotta be miserable for him both mentally and physically.

He's starting to get the bad flank pains and there's fluids building up in his trunk. Gotta be careful with the diet and pay close attention to everything. Thanks for the tip. Got any decent meal ideas? On top of cooking for myself and a house full of exchange students already and now I'm going to be cooking for my parents across town. I watch Masterchef and Food Network 24/7 but any meal ideas would be awesome. It's tough cooking all the time.
Title: Re: Kidney cancer (serious post)
Post by: RagingBull on July 29, 2013, 09:56:45 AM
Sending positive vibes...
Title: Re: Kidney cancer (serious post)
Post by: Z Father on July 29, 2013, 10:35:11 AM
Sorry Dustin, Groink doesnt care if people live or die on here.

I didn't say "people", I said you

Sorry to hear Dustin...that must be very tough to deal with.
Title: Re: Kidney cancer (serious post)
Post by: arce1988 on July 29, 2013, 12:12:04 PM
 :(
Title: Re: Kidney cancer (serious post)
Post by: CT_Muscle on July 29, 2013, 03:28:10 PM
That's pretty much the only direction we're able to take things. I'm just really thankful that I'm shaking hands with local farmers and getting to know everyone out there. I live on Vancouver Island so there's no reason to not be eating fresh, organic veggies at the very least. Meat is very sparse. Oncologist said he can afford some but outside of fresh salmon and organic chicken that's about all. It's just there to keep him sane. Dude can't drink beer anymore so taking away meat must be horrible. He's been great and hasn't complained at all, but I know it's gotta be miserable for him both mentally and physically.

He's starting to get the bad flank pains and there's fluids building up in his trunk. Gotta be careful with the diet and pay close attention to everything. Thanks for the tip. Got any decent meal ideas? On top of cooking for myself and a house full of exchange students already and now I'm going to be cooking for my parents across town. I watch Masterchef and Food Network 24/7 but any meal ideas would be awesome. It's tough cooking all the time.
You can do a lot of raw foods so you don't have to cook as much. Start off with salads and mix up the veggie content
Title: Re: Kidney cancer (serious post)
Post by: O.Z. on July 29, 2013, 04:39:26 PM
Thanks, guys. And don't worry, I knew Falcon would recommend avoiding heme iron. It's to be expected.

They removed his right kidney so finding low protein, healthy organic meals has been a bit of a bitch. He grew up on the Island in a small town doing nothing but drinking and shooting guns but he's done really well cleaning up his diet. He didn't eat particularly shitty before, but now that there's zero room to fuck around he's really pulled in the reigns. Mom's always cooked well and went vegetarian a few years ago so she's been all right with the meal prep. I've been going to the farmer's markets too and connecting with local growers because we have awesome product and livestock that I should really take advantage of. It's expensive but every bit helps. I've also spent the summer building a small garden too so it's nice eating things grown by my own hand and sharing it with family.

It's tough to know how much time he has left. It's really difficult seeing the oncologist and nephrologist so infrequently and trying to piece things together. Just visiting the parents lots to help with chores and keep everyone in good spirits. I never knew how much of a weird dynamic it would be to try taking in all of this but not patronizing him and changing the way we act. I was honestly preparing for a different outcome. I thought he'd be treated with chemo, we'd tough out a shitty period and then he'd bounce back. Change of plans I guess... trying to not be too much of a bitch because I know it happens to millions, but it's a different change of plans for sure. We're expecting November 17th and my bro just had another baby girl so it's really put a lot of weight on his shoulders.

Hopefully we find some sort of complimentary therapy or a good clinical trial where he'll get a higher level of care. Sure helps to know people in the health care industry though. Getting awesome care from the local hospital and the BC Cancer Center. All we can do is handle things as gracefully as possible and make the best of our time. 8)

the best you can do.
Title: Re: Kidney cancer (serious post)
Post by: 99 Bananas on July 29, 2013, 06:46:17 PM
Tough times are when it really becomes important to keep it together. The dying person can feel like a real burden if everyone is stressed and losing their mind without any idea what to do. Death is tough for many people to deal with because it brings about a feeling of helplessness like no other. On top of that it's tough to imagine how you can go on living while someone you loved is passing. I think the most you can do is try to be there as much as you can.  Best of luck to you.
Title: Re: Kidney cancer (serious post)
Post by: The Abdominal Snoman on July 29, 2013, 07:14:00 PM
My father also died from this.  He was an alcoholic for many years.  He started drinking when he was 16 and stopped in his early 50's.  In 2011 he was diagnosed with stage 4 cancer... by then, the cancer had spread everywhere.  He died of kidney and liver failure in late 2011, he was 71.

Lesson learned:  Don't drink alcohol.  Don't fall victim to the social pressures and the strategic marketing.  It's toxic... even in small amounts.  

When he stopped drinking, what was his diet and lifestyle like if you don't mind me asking? Most alcoholics will have problems with Diabetes...A lot of them un-diagnosed...Every diabetic who doesn't have the disease under control will have an overflow of yeast in their body and are prime targets for cancer...