http://washingtonexaminer.com/sebelius-wont-waive-regulation-for-girl-with-five-weeks-to-live-someone-lives-and-someone-dies/article/2531097

No, I would not call this a "death panel." To be clear, I disagree with the way organ transplants are handled in this country and with the extreme involvement of government in managing them. But this isn't a "death panel."
Ideally such decisions should be made by patients and their doctors on a case-by-case basis. Not by bureaucrats using "one size fits all." But this is a difficult topic - there is a legitimate government interest there and generally speaking we as a society are likely to want some regulation or oversight.
What Sebelius said was accurate - albeit poorly phrased and completely insensitive. Even if the transplant happened and the girl lived, then what? She's just one girl and many people like her die every day for lack of organs. The exemption would not do anything to fix the underlying issue, or even begin to address it. It would just serve to let a bunch of politicins feel warm and fuzzy and brag to their constituents about how they helped save a little girls life - as if they had played some major part.
With all that said, let me get to the important part of my post:
If this really is something you're concerned about, sign up to be an organ donor (it truly is the gift of life and, maybe, the most worthwhile thing some of us will do in our lives).
If this is something you are concerned about, lobby to loosen restrictions currently in place that result in organs not being transplanted.
If this is something you are concerned about, demand that laws currently prohibiting cutting-edge biomedical research and hamper tissue engineering efforts that could one day let us grow lungs so a little girl doesn't have to die.
If this is something you are concerned about, don't forget about this girl's plight – or the plight of others like her – when the twenty four hour news cycle moves on to the next story.
And if you really care about this issue, then please, in the name of anything human still left in you, don't treat this little girl as a pawn to advance a political agenda or to score cheap points on a politics board online.
Oh wait... you already did.
You're a great human being 333386. A truly great human being.