Author Topic: Crohns disease - best way to control flare ups  (Read 8523 times)

sancho ed

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Re: Crohns disease - best way to control flare ups
« Reply #25 on: July 18, 2013, 11:14:57 PM »
1--- Crohn's and UC always cause malabsorption. Bad way to go if you are intending to gain guality muscle.
2--- intestinal resection is usually reserved for UC which is invariably associated with adenoCA of colon.  Crohn's is nasty in that it can lead to the development of bowel fistulas. If that happens, then surgery may be necessary.
3---The most effective 'real treatment' is with TYSABRI, a monoclonal antibody that is specific for the VLA4 receptor protein on WBCs. This compound causes a decrease in inflammatory change in the bowel, and thus leads to improvement in GI symptoms.
One big drawback may be the development of PML-- progressive multifocal leukoencephaloparhy--
a deadly CNS disease caused by the JC virus and related to the overall immunosuppression in CNS caused by TYSABRI. This med will eventually prevent you from shitting your brains out-- or prevent hematochezia/melena.
Good luck, although sarcopenia is the inevitable result of Crohn's disease.

DOC
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yo doc so I looked up tysabri.....but its only for MS. wouldn't an md have difficulties prescribing it for crohns? thanku for the info, btw (:

sancho ed

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Re: crohns disease
« Reply #26 on: July 18, 2013, 11:15:53 PM »
http://www.amazon.com/gp/aw/d/B000S85H5C/ref=mp_s_a_1_3?qid=1374138348&sr=8-3&pi=SL75

This is the brand ive been using. It comes with cloves already in it. It also has black walnut which is nearly important as the wormwood. I buy it from the local drug emporium though since theyre almost as cheap as online. Get a couple bottles to start and take the recommended dosage and if it goes good good for the first week take more. Ive seen liver flukes come out since ive taken this and have had complete alleviation from all my stomach pains and general malaise.

I was no doubt on my way to having crohns disease fullblown but didnt get there thank God. However, since you are at a further stage it may take a little longer to see improvements. Get two bottles and take it til you run out..if there hasnt been a significant and I mean significant improvement, then dont take it again. But I feel it will help a lot.

Good luck man



ordered it through puritan.com. thanks for the lead bud!

mdn250

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Re: Crohns disease - best way to control flare ups
« Reply #27 on: July 22, 2013, 09:56:56 PM »
I have had Crohns for years. Since I was 21, that was when I finally was diagnosed. Took awhile to get the right tests/results.
It has fucked my life up pretty bad. Who knows though, in 2001 I got introduced to Mat Duvall through his ex at the time and started stepping up my training/diet/gear bigtime! So the worst flare caused me to re-evaluate things and what it is like to spend all this money and then lose all this muscle and condition. However, don't be too scared because you can really keep a solid foundation. Just don't expect to be super ripped or super big....you can maintain a nice bodyfat level with nice enough size to be happy.

Just trust me medication wise...if you keep getting flares and going on prednisone for long periods...you CANNOT and will not stay lean and its a bitch. I was lucky enough to have good insurance...I pay private and pay more than 600per month but it covers the drug that saved my life..Remicade. It is given in infusions and a cancer center or medical infusion center depending on your town/city. It takes about 4 hours every 6-10weeks and it is very expensive...I pay nothing except that insane monthly insurance fee...but each bill I get is 18k and it covers that every 6weeks. (thank god). The drug  is probably nasty if you read up on it...however I could care less. I was at appoint where BAGS of IV prednisone wouldn't work and after 23days got the OK from insurance (nice right? they wait till the hospital says they are going to cut you open and give you a colostomy bag) before they "allow" you to have a shot at the Remicade :) But anyways...should not complain it has been a livesaver.

I know a lot about Crohns and have been through most so PM me whenever and I will do my best to help any questions. Everyone here is right and very helpful in giving you their opinion on diet/etc...but in reality...sometimes only superior new medicine can almost "cure' you and keep remission longer than you ever imagined. Just don't read the side effects for Remicade,, Humira, or the others :)

Best of luck my friend
MDN

sancho ed

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Re: Crohns disease - best way to control flare ups
« Reply #28 on: July 22, 2013, 10:39:46 PM »
I have had Crohns for years. Since I was 21, that was when I finally was diagnosed. Took awhile to get the right tests/results.
It has fucked my life up pretty bad. Who knows though, in 2001 I got introduced to Mat Duvall through his ex at the time and started stepping up my training/diet/gear bigtime! So the worst flare caused me to re-evaluate things and what it is like to spend all this money and then lose all this muscle and condition. However, don't be too scared because you can really keep a solid foundation. Just don't expect to be super ripped or super big....you can maintain a nice bodyfat level with nice enough size to be happy.

Just trust me medication wise...if you keep getting flares and going on prednisone for long periods...you CANNOT and will not stay lean and its a bitch. I was lucky enough to have good insurance...I pay private and pay more than 600per month but it covers the drug that saved my life..Remicade. It is given in infusions and a cancer center or medical infusion center depending on your town/city. It takes about 4 hours every 6-10weeks and it is very expensive...I pay nothing except that insane monthly insurance fee...but each bill I get is 18k and it covers that every 6weeks. (thank god). The drug  is probably nasty if you read up on it...however I could care less. I was at appoint where BAGS of IV prednisone wouldn't work and after 23days got the OK from insurance (nice right? they wait till the hospital says they are going to cut you open and give you a colostomy bag) before they "allow" you to have a shot at the Remicade :) But anyways...should not complain it has been a livesaver.

I know a lot about Crohns and have been through most so PM me whenever and I will do my best to help any questions. Everyone here is right and very helpful in giving you their opinion on diet/etc...but in reality...sometimes only superior new medicine can almost "cure' you and keep remission longer than you ever imagined. Just don't read the side effects for Remicade,, Humira, or the others :)

Best of luck my friend
MDN


sweet. thanks for the info. ive never heard of remicade but will look it up. as for humira, ive recently started hearing about it......is it better then asacol?

Necrosis

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Re: Crohns disease - best way to control flare ups
« Reply #29 on: July 23, 2013, 08:56:34 AM »
sweet. thanks for the info. ive never heard of remicade but will look it up. as for humira, ive recently started hearing about it......is it better then asacol?

Bupropion Is worth looking at as well.

Ex Coelis

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Re: Crohns disease - best way to control flare ups
« Reply #30 on: July 23, 2013, 09:11:45 AM »
stop eating gluten

NI_Muscle

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Re: Crohns disease - best way to control flare ups
« Reply #31 on: July 23, 2013, 09:35:54 AM »
Paleo autoimmune protocol - no grains, dairy, legumes - helped me get over spinal arthritis condition; the mechanism of which is very similar/closely linked to Crohns.

Gluten is the main culprit to avoid, as someone has already said.  Literally punches holes in the stomach lining which leaves you susceptible to all kinds of autoimmune problems

mdn250

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Re: Crohns disease - best way to control flare ups
« Reply #32 on: July 28, 2013, 02:34:29 PM »
sweet. thanks for the info. ive never heard of remicade but will look it up. as for humira, ive recently started hearing about it......is it better then asacol?

Yes. It is a biological drug so its a last resource kind of thing. If you can keep yourself in remission with asacol even high doses of 4tabs 3times daily then you should be VERY VERY happy. I did that for a few years before I got my 2nd flareup and needed massive prednisone. Took awhile to get the remicade since it was very new at the time...now its fairly common..you also see commercials in US for Humira..same type of med  that TNF-inhibitor..that you can inject yourself sub-q like you would insulin. It comes in rediject pens as well like insulin..I still can't switch to it because Remicade works...if you switch it apparently is not responsive when going back to remicade..your body that is....so when and IF remicade fails I will go humira.

Look up Remicade and Humira online and check it out for general info you know..you need to learn as much as you can. And don't be hesitant to post on a real Crohns/Colitis website..those people generally have had it for so long they know all the tricks to TRY...notice I said try...sometimes things work for others and not for me...same as gear and training IMHO.

I hope you stay well my friend! Good luck and pm if you ever need any info since I don't always check the threads.

MDN

usmcdevildoc

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Re: Crohns disease - best way to control flare ups
« Reply #33 on: July 28, 2013, 03:24:17 PM »
yo doc so I looked up tysabri.....but its only for MS. wouldn't an md have difficulties prescribing it for crohns? thanku for the info, btw (:

No man used in both MS and Crohn's. Once a month IV that is it.
If you got this HMO shit, your insurance might have a hissy fit, but go for it when all else fails.

DOC
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biceps

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Re: Crohns disease - best way to control flare ups
« Reply #34 on: July 28, 2013, 04:01:33 PM »
im just curious if anyone else has experienced this and what have you taken to control the flare ups. mines is currently flared up and im struggling to control it. been taking asacol, probiotics, aloe vera gel caps, charco caps, and digestive enzymes. any info would be appreciated. its really draining during the day and especially during the workouts. damn constant cramping and shitting sucks. wouldn't wish it on anyone.....well maybe my worst enemy lol please no typical "getbigger" smartass responses

DWGE is a gluten and gliadin free prebiotc containing mixture of biologically active materials including benzo-quinones ( the 2,6-dimethoxy-p-benzoquinone (2,6DMBQ), oligosaccharides derived from wheat germ and oligopeptides. The wheat (Triticum vulgaris) is one of the largest known natural sources of these compounds), oligosaccharides  helps to stimulate the growth and/or activity of bacteria in the digestive system with a beneficial effect in the digestive process. After  the harmful proteins of gluten, gliadin, fructans and toxins are eliminated , the wheat germ extract concentration allows the immunomodulatory effects of the substituted benzo-quinones to be obtained without the consumption of impractically large amounts of wheat germ.
Oligosaccharides can have many functions; for example, they are commonly found on the plasma membrane of animal cells where they play a role in cell–cell recognition.  DWGE aids in many metabolic processes of the body including weight maintenance, immune system stabilization, stress and oxidative factors, and more efficient food to energy conversion.  Common Wheat Germ is estimated to have a beneficial food to energy conversion rate of 7% but the DWGE converse rate is estimated to be 78%.  The vitamin E, vitamin B1, carotene and niacin content of the product are 2-3 times higher than normal wheat germ.  DWGE has also been shown to play a major role in the regulation of Immunoglobulin A (IgA), Immunoglobulin E ( IgE), Immunoglobulin G (IgG), and Th1 and Th2 cells levels.
Oligosaccharides also aid in the digestion of macronutrients .  This property has gained recent interest from the nutritional community because the human digestive system has a difficult time breaking down many carbohydrates. It is estimated that up to  90% of ingested carbohydrates escape digestion in the small intestine and reach the colon.  Here, DWGE performs a different function,  it acts as a prebiotic and prevent the cells to take up the escaped sugar . Prebiotic is a fairly recently coined term referring to food components that support the growth of certain kinds of beneficial bacteria in the colon (large intestine). We’re learning now that a whole other digestive system is happening in the colon, with important influences on the rest of the body.
Our understanding of the role of Prebiotics is based on scientists’ rapidly expanding knowledge of how the micro biome–the large population of microbes, their genomes and the interactions between them within the GI tract–can significantly impact human health.  Prebiotics are non-digestible ingredients that serve as nutrients for beneficial GI bacteria.  Unlike probiotics, which attempt to add certain living microbes to the GI tract, prebiotics work primarily by providing the nutrition that these beneficial microbes need to grow and thrive.  Since the huge number of microbes in the GI tract can overwhelm the relatively small amounts of bacteria contained in probiotic supplements, many researchers believe that prebiotics may have a more significant and lasting impact on health.

 DWGE is a selectively ingredient that allows specific changes, both in the composition and/or activity in the gastrointestinal micro flora that confers benefits upon host well-being and health.  In addition DWGE contains short-chain fatty acids (SCFAs). New research has preliminarily demonstrated that SCFAs provide many benefits, both locally in the colon, and in the rest of the body. DWGE also aids in the production of various butyrate (salts of  butyric acid), which recently received attention as possibly  colon tissues damage protector, including ulcerative colitis.

Additionally, there is some evidence that DWGE may promote further absorption of some minerals that have escaped the small intestine, including calcium and magnesium.

The following benefits may can be expected from using DWGE:
•   May increases the immune system’s ability to identify harmful cells for destruction
•   It may help to regulate glucose metabolism at the cellular level, starving enemy cells that require excessive glucose
•   It may help to regulate and modulate the immune system’s white blood cells for peak performance -- T cells, B cells, macrophages and NK cells
•   It may help to maintain healthy cell-mediated and humoral (Th1/Th2) immune balance
•   It may help to regulate IgA, IgE, IgG levels
•   Supports cell metabolic regulation
•   Promotes immune system modulation
•   It may enhance the ability of T-cells to respond to antigen presentation
•   Helps to activate digestive enzymes
•   Helps to lower cholesterol
•   Helps to lower triglycerides
•   Helps to improve insulin sensitivity and glucose metabolism
•   Helps to detoxify the colon


Marty Champions

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Re: Crohns disease - best way to control flare ups
« Reply #35 on: July 28, 2013, 05:13:04 PM »
is chrons=hemroids

you probably eat too much meat and have to strain to take a shit =very uncomfortable

you need more fruit in your diet and beans
A

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Re: Crohns disease - best way to control flare ups
« Reply #36 on: July 28, 2013, 05:52:42 PM »
is chrons=hemroids

you probably eat too much meat and have to strain to take a shit =very uncomfortable

you need more fruit in your diet and beans

No chrones is not hemorrhoids

Marty Champions

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Re: Crohns disease - best way to control flare ups
« Reply #37 on: July 28, 2013, 05:56:50 PM »
No chrones is not hemorrhoids

the symptoms are the same as to someone who needs to take a shit but isnt doing it properly

its either diet related, genetic or both

meat will give you hemroids and constipate you

i remember a freiend who was real athletic but has stomach ulcer at a very young age his family loved to eat meat i dont that kid shit much
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Re: Crohns disease - best way to control flare ups
« Reply #38 on: July 28, 2013, 09:56:52 PM »
the symptoms are the same as to someone who needs to take a shit but isnt doing it properly

its either diet related, genetic or both

meat will give you hemroids and constipate you

i remember a freiend who was real athletic but has stomach ulcer at a very young age his family loved to eat meat i dont that kid shit much

I eat heaps and heaps of meat, but lots of fibrous veggies as well. And my shits are clean as a whistle, in fact it makes a high pitched  "wooooooosh" whistle noise every time I shit because it comes out so quick and clean.