Author Topic: Dad's been diagnosed with parkinsons  (Read 4183 times)

IroNat

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Re: Dad's been diagnosed with parkinsons
« Reply #25 on: July 01, 2024, 11:24:02 AM »
There seems to be a lot people getting Parkinsons and also Multiple Sclerosis and ALS.

irishdave

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Re: Dad's been diagnosed with parkinsons
« Reply #26 on: July 01, 2024, 12:01:03 PM »
Ok I’m still drunk but here goes a short list of what works on my mother : she has severe Parkinsonism and it makes her freeze not shake like Michael j fox. Believe it or not the shakes are easier to treat with the dopamine tablets (sinemet). There’s a few new treatments I’m looking into for her like Cue1.

Exercise is paramount - movement is medication. Stationery bike/recumbent is ideal.


Infrared light works well try it in Near infrared mode too. - I think this holds the cure. Experiment all over



CBD is very effective - 10% is what we’re using currently. Expensive but as effective or more so than her medication which is essentially speed and her resistance just keeps rising so we’ve kept the dose the same for a while. Seeing neurologists once or twice a year is a waste of time

I also roll her spliffs every day - less is more - the strain of thc is very important. Edibles work better it seems but hard to acquire currently but I’m working on it

It’s a very wide spectrum so it is. Some people have it worse than others - anxiety a huge factor

I’ll post more later but those are the key things I’ve learned


Cook

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Re: Dad's been diagnosed with parkinsons
« Reply #27 on: July 01, 2024, 12:09:02 PM »
Best wishes to your father

irishdave

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Re: Dad's been diagnosed with parkinsons
« Reply #28 on: July 01, 2024, 12:14:25 PM »
There seems to be a lot people getting Parkinsons and also Multiple Sclerosis and ALS.

It used to be mostly genetic but is becoming way more common. We think it was anaesthesia from keyhole surgery on her knee that caused it. But try proving that. No known cause no known cure

SOMEPARTS

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Re: Dad's been diagnosed with parkinsons
« Reply #29 on: July 01, 2024, 12:14:53 PM »
My buddy's mom just got diagnosed with it. SUCKS

SOMEPARTS

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Re: Dad's been diagnosed with parkinsons
« Reply #30 on: July 01, 2024, 12:17:15 PM »
Dont take the nasty meds go with Cannabis instead

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6682376/


Right, drugs are bad for your liver.

wes

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Re: Dad's been diagnosed with parkinsons
« Reply #31 on: July 01, 2024, 12:45:37 PM »
Infrared light. Look for high power LEDs. My mother has it too. Worst type they’ve seen. 4 different diagnoses.
 Will reply in more detail when sober.
Sorry to hear that Dave.

hench

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Re: Dad's been diagnosed with parkinsons
« Reply #32 on: July 01, 2024, 01:57:01 PM »
What sort of cbd, anything like this?
https://www.boots.com/vitabiotics-cbd-oil-1000mg-30ml-10297897?awaid=2041&utm_source=redbrain&utm_medium=shopping&utm_campaign=css&utm_source=Redbrain+Ltd-176013&utm_medium=affiliate&utm_campaign=Comparison+Shopping+Service+%28CSS%29&utm_term=&utm_content=&sv1=affiliate&sv_campaign_id=176013&awc=2041_1719867392_21262bbc8d100d6e4ed14bdc91c4d165
Ok I’m still drunk but here goes a short list of what works on my mother : she has severe Parkinsonism and it makes her freeze not shake like Michael j fox. Believe it or not the shakes are easier to treat with the dopamine tablets (sinemet). There’s a few new treatments I’m looking into for her like Cue1.

Exercise is paramount - movement is medication. Stationery bike/recumbent is ideal.


Infrared light works well try it in Near infrared mode too. - I think this holds the cure. Experiment all over



CBD is very effective - 10% is what we’re using currently. Expensive but as effective or more so than her medication which is essentially speed and her resistance just keeps rising so we’ve kept the dose the same for a while. Seeing neurologists once or twice a year is a waste of time

I also roll her spliffs every day - less is more - the strain of thc is very important. Edibles work better it seems but hard to acquire currently but I’m working on it

It’s a very wide spectrum so it is. Some people have it worse than others - anxiety a huge factor

I’ll post more later but those are the key things I’ve learned

irishdave

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hench

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Re: Dad's been diagnosed with parkinsons
« Reply #34 on: July 01, 2024, 02:28:09 PM »
How much does it help her?
Also I was unaware that despite brain scans and mri there is no definitive test to say someone has parkinsons, they just use them to try eliminate other things.
My auntie went round his for dinner the other day and said he was quite shaky but after eating it'd basically stopped!...
I'm still not convinced it's not part of his back issues and stenosis.
How does the led lighting help?

Cibdol is the one we get from local health stores it’s around 70 euros for a bottle of 30 x 10% here

All I’ll say is don’t bother with cheap ones from Holland and Barrett

irishdave

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Re: Dad's been diagnosed with parkinsons
« Reply #35 on: July 01, 2024, 03:10:47 PM »
How much does it help her?
Also I was unaware that despite brain scans and mri there is no definitive test to say someone has parkinsons, they just use them to try eliminate other things.
My auntie went round his for dinner the other day and said he was quite shaky but after eating it'd basically stopped!...
I'm still not convinced it's not part of his back issues and stenosis.
How does the led lighting help?

They basically look at your dopamine receptors and guess

I’ve seen the top ones in Ireland with her - clueless. As I said, many different diagnoses. Not one the same. Absurd. Neurologists me arse

CBD helps more than her meds with zero to little sides only sleep. It’ll take some convincing but getting them to take thc just lie at first

irishdave

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Re: Dad's been diagnosed with parkinsons
« Reply #36 on: July 01, 2024, 03:12:43 PM »
Infrared is very important trust me but you must use it plenty and if you slack it fades
Just like a medicine would

https://platinumtherapylights.com/blogs/news/a-complete-guide-to-red-light-therapy

The sun is great too. Hat off. Little to no sunscreen for a while. The sun is good.
The sunbed might help too but I haven’t brought the mother to one yet

Remember Covid is a factor too. If he took the vaccine he’s probably compromised so being in UV is important

irishdave

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Re: Dad's been diagnosed with parkinsons
« Reply #37 on: July 01, 2024, 03:14:05 PM »
How much does it help her?
Also I was unaware that despite brain scans and mri there is no definitive test to say someone has parkinsons, they just use them to try eliminate other things.
My auntie went round his for dinner the other day and said he was quite shaky but after eating it'd basically stopped!...
I'm still not convinced it's not part of his back issues and stenosis.
How does the led lighting help?

Make sure you use the light on his back and get physio because it very much could be related to his back

My mother has curvature of the spine from back surgery years ago, and I 100% think it is correlated

There are many complex nerve bundles wrapping around your spine and thorax and I certainly believe it’s not just brain related but also physical short circuits


I’m an electronic engineer on paper so I understand the physics and the EM spectrum you need to learn a bit about that to understand mitochondria and light interaction

hench

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Re: Dad's been diagnosed with parkinsons
« Reply #38 on: July 01, 2024, 03:47:48 PM »
Hat off in the sun he never does, coz he had skin cancer on his bald head a few years ago and had it removed,  so there's another blow he was dealt.

They basically look at your dopamine receptors and guess

I’ve seen the top ones in Ireland with her - clueless. As I said, many different diagnoses. Not one the same. Absurd. Neurologists me arse

CBD helps more than her meds with zero to little sides only sleep. It’ll take some convincing but getting them to take thc just lie at first

irishdave

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Re: Dad's been diagnosed with parkinsons
« Reply #39 on: July 01, 2024, 03:51:46 PM »
Hat off in the sun he never does, coz he had skin cancer on his bald head a few years ago and had it removed,  so there's another blow he was dealt.

So did my mother from her face a couple of years before the Parkinson’s or we ever used red light

Look up skin cancer and people with melanoma improving in sunny climates. Don’t believe everything you hear. I had bad acne as 13 year old and dermatologist told me go on sunbed once a week and it worked

The Scott

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Re: Dad's been diagnosed with parkinsons
« Reply #40 on: July 01, 2024, 07:57:42 PM »
So after feeling unwell like his head is in a fog my dad finally had a test a couple of months ago and last week his been told its parkinsons.
It took him a year to get an appointment! He's gone from having mild barely noticeable hand shakes at the end of last year to arms and legs shaking more recently.
After battling chronic back pain for 35 years after slipping he now dealt this for retirement.
Anyone have experience with parkinsons? To me the subtle hand shakes to now arms and legs seems pretty quick..?
He's scared of what he'll become and doesn't even want to start the meds because of the nasty sounding side effects.
It's devastating all round,  any help/advice appreciated
I've heard that creatine can help but there's so many brands out there.

I am no one but if it is alright with you and your father, then your father shall be the subject of my hope this night and several more.   If your father is willing then his desire shall be my hope for him.

Either way, thank you and please greet your dad for me.

hench

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Re: Dad's been diagnosed with parkinsons
« Reply #41 on: July 01, 2024, 08:48:01 PM »
100% I agree the sun is great for many things, he got burnt many times on his head though without a hat they said that caused it.
I also am bald and I've been burnt a few times  it doesn't take long now before my head has an uncomfortable tingle in the sun!
Do you have a link to the exact cbd your mum uses?

So did my mother from her face a couple of years before the Parkinson’s or we ever used red light

Look up skin cancer and people with melanoma improving in sunny climates. Don’t believe everything you hear. I had bad acne as 13 year old and dermatologist told me go on sunbed once a week and it worked

hench

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Re: Dad's been diagnosed with parkinsons
« Reply #42 on: July 01, 2024, 08:49:27 PM »
Thankyou, everyone that's given well wishes are much appreciated!

I am no one but if it is alright with you and your father, then your father shall be the subject of my hope this night and several more.   If your father is willing then his desire shall be my hope for him.

Either way, thank you and please greet your dad for me.

Van_Bilderass

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Re: Dad's been diagnosed with parkinsons
« Reply #43 on: July 02, 2024, 08:57:36 AM »
I'm not positive, but I think the CBD craze was a bit of a scam maybe? As BigRo and others said, the THC in itself is medicinal, probably responsible for most of the medicinal benefits of the plant I think. It's just that some think getting high is immoral so they push these inferior and most of the time synthetic CBD products. I've said to people that getting high or euphoric can be beneficial and therapeutic in itself and they just say, "you only say that because YOU want to get high." Well of course! But if you think about it, to me it's obvious how euphoria, especially the mild euphoria of weed, can be very therapeutic and it doesn't have to be bad or immoral.

joswift

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Re: Dad's been diagnosed with parkinsons
« Reply #44 on: July 02, 2024, 09:17:23 AM »
I'm not positive, but I think the CBD craze was a bit of a scam maybe? As BigRo and others said, the THC in itself is medicinal, probably responsible for most of the medicinal benefits of the plant I think. It's just that some think getting high is immoral so they push these inferior and most of the time synthetic CBD products. I've said to people that getting high or euphoric can be beneficial and therapeutic in itself and they just say, "you only say that because YOU want to get high." Well of course! But if you think about it, to me it's obvious how euphoria, especially the mild euphoria of weed, can be very therapeutic and it doesn't have to be bad or immoral.
Absinthe was better when it had hallucinogenic properties, you just get pissed now

GymnJuice

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Re: Dad's been diagnosed with parkinsons
« Reply #45 on: July 02, 2024, 12:12:35 PM »
Absinthe was better when it had hallucinogenic properties, you just get pissed now

It helped Van Gogh tune out the negativity.  ;D

irishdave

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Re: Dad's been diagnosed with parkinsons
« Reply #46 on: July 02, 2024, 01:41:53 PM »
I'm not positive, but I think the CBD craze was a bit of a scam maybe? As BigRo and others said, the THC in itself is medicinal, probably responsible for most of the medicinal benefits of the plant I think. It's just that some think getting high is immoral so they push these inferior and most of the time synthetic CBD products. I've said to people that getting high or euphoric can be beneficial and therapeutic in itself and they just say, "you only say that because YOU want to get high." Well of course! But if you think about it, to me it's obvious how euphoria, especially the mild euphoria of weed, can be very therapeutic and it doesn't have to be bad or immoral.

Go away you idiot you’re an expert on everything but are clueless. Have you used either? They compliment each other and cbd is excellent on its own if high quality but thc gives it the kick

You think you’re a genius but you try waaayyyy too hard

joswift

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Re: Dad's been diagnosed with parkinsons
« Reply #47 on: July 02, 2024, 02:08:12 PM »
Go away you idiot you’re an expert on everything but are clueless. Have you used either? They compliment each other and cbd is excellent on its own if high quality but thc gives it the kick

You think you’re a genius but you try waaayyyy too hard

Dont have any more cans... ;D

BigRo

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Re: Dad's been diagnosed with parkinsons
« Reply #48 on: July 02, 2024, 02:28:23 PM »
Dont have any more cans... ;D

Every night of the week it seems.

Van_Bilderass

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Re: Dad's been diagnosed with parkinsons
« Reply #49 on: July 03, 2024, 03:14:03 AM »
Go away you idiot you’re an expert on everything but are clueless. Have you used either? They compliment each other and cbd is excellent on its own if high quality but thc gives it the kick

You think you’re a genius but you try waaayyyy too hard

Saying CBD is close to "worthless" on its own is hardly an uncommon stance even by experts. Do you use it own its own? You just said you didn't, you said to trick your relative to ingest TCH lol.

Of course I have used both extensively. I've smoked a ton of CBD flower. It was all the rage but it has fallen by the wayside. Now they try to sell many other isolated cannabinoids when it's unknown which are important.

There were plenty of getbiggers who concurred with my CBD opinion, it was quite a while ago. I don't discount that CBD has effects on its own but it wasn't the cure-all it was promoted as.

Furthermore, all the pure CBD sold is synthetic. I suspect even the buds are sprayed with it to get that high concentration. It's not necessarily a problem that it's synthetic, but these weed gurus always talk about how everything has to be "natural" and man made chemicals are bad.